See this face? This is the face of a confident, slightly snarky, bright, intelligent, caring, sweet, child with Asperger's. But the latter only describes how he relates to certain stimuli and communicates......not how he faces the world.
That has changed in two years of freedom and a place to exhale and relax. He has learned to trust, feel, experience and play. Every moment of every day potentially can throw him a curve ball or throw him under the bus but he now bends, yields with dignity to those moments......and when necessary he can pitch one helluva fit. But those are righteous indignation moments not victim moments.
My grandson is not a victim of Autism, he is specially able because of Autism. Do I wish he wasn't....truthfully for him yes. Who in their right or left brain would ask for having so many things going on at one time in your brain and still have to sort out the meanings of things and cope with impatient, rude, uncaring, folks and also loving, nurturing, scoop you up and love you folks because all of the above are equally hard to process for a child with Autisum? The small bundle of energy and wit named RyLeigh has taught me lessons about myself I didn't know were possible. He makes me want to be a better person not only to/for and with him but to/for and with myself and all around me and all because I know him. I see how he has struggled gracefully...although not always with any patience....let's not over do the violins and roses here. He hears, sees, smells, tastes, feels and learns from everything from which he comes into contact with each breathe, each moment of each day. In ways you and I cannot even fathom.
Good News: Today was a good day. A good beginning. A new challenge in life, a first day in 2nd grade with a very young and enthusiastic teacher and he came home with a smile on his face and information to share. The difference is hope. He has it now. The summer program he was in gave him strength and belief that he could do so many things that he had learned from school to be reluctant to try. He made such huge strides in the world of "boy" and how to be one. We sent a shy and tentative boy to summer program in June and what we brought home in August is a boy who has the tenacity of spirit to have a little bit of "been there done that" in his heart.
Sometimes his Mom, Papa and I just sit and stare at how blessed he is, what a blessing he is. Not only to us but to others as well. Tonight after he has gone to sleep, I'm gonna sneak in and watch a successful child breathe in and out in sleep and be thankful for a day full of promise and hope and ask for many, many more for a boy who deserves all the happiness the universe can shower on him.
Smooches and squoozes, Oma Linda