Wednesday, February 15, 2012

the medicine blows or why I hate doctors

yep, here I am at the corner of oh hell and really?

I recently got a formal diagnosis of fibromyalgia and depression. Again.

The new doctor prescribed Cymbalta. I told Sweet Man after a week of being on it that it had given me a male brain. I couldn't remember what I had been asked to do and didn't remember that it was important. He laughed and said, "yes but you also haven't yelled in a week". Yep, that's true because I was afraid if I did I would make myself dizzier or the buzzing in my ears would be elevated to a level where my ears would fall off. I started off taking it at night because I do tend to have a "big" reaction and I might as well be laying down when that happens.

I know that anyone on an antidepressant has to give the mind numbing stuff at least three weeks before you can tell if it is going to work. That being said, I am starting my third week today and yesterday afternoon I couldn't move. I'm not making a funny now. I literally had muscle stiffness and weakness that was so severe, I couldn't sit, stand or move to another spot. When I called the pharmacist, a really nice man who I have known for 30 years, he said I shouldn't have to settle for a med that was causing more pain than it was solving. Said that this reaction was not untypical but also could be life threatening because our internal organs are also muscles and could have the same reaction as my neck, back, shoulder, arm and legs muscles. Said I needed to call the dr. to have him decrease the dosage but cautioned me not to stop taking the drug.

I have had a belly ache since day 2. Started this muscle stuff 6 days ago with a stiff neck which has moved down my back to my legs and onto my arms. My skin is a little yellow. All of these are listed as possibly severe side affects to the Cymbalta. When I called my Dr. I was told that he would get back to me today. This morning I was told to continue the dosage and he would see me at my scheduled appointment the 29th. I said No, I will not. To that his nurse said,  "well do you think you need to see the doctor before then". Why yes, yes I do. So the earliest they can see me is Friday.

I'm in more pain with this than I usually am. And the statements I keep sifting through my brain are: Why did you do this to yourself, stupid woman? and Why did I trust another doctor? Along with What in the hell am I supposed to do for 2 more days?

If any of you has even a glimmer of an answer, let me know.

19 comments:

  1. I've suffered from fibromyalgia for years. It seems this year it has been worse than ever for a lot of us. I can press on certain parts and just feel the throbbing pain. If you need to talk, you know my email address. I'm a good listener and will help in any way I can.
    Mary

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  2. Tell the nurse you are having a severe negative reaction to your medication and need it adjusted right away! Tell her you are having a SEVERE REACTION, LIFE THREATENING, whatever it takes to get in right away. Sometimes you have to be a squeaky wheel to get any attention.

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  3. Sorry, I have no answers, but I hope the doc actually listens and does something about it!

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  4. I hear you!!! I have The Big F, too. The medicine has almost killed me so I am back to nothing for that...and yes, I'm depressed, that happens when you hurt all the time, you get depressed.

    I have recently weaned myself off all meds...nut meds, not health meds, except for one to help me sleep. I take Red Krill oil and that's it.

    I use ice packs, stretches, warm baths and walks, where I can yell all I want to yell! Sometimes a good scream into a pillow is really relaxing.

    Stopping some meds cold turkey can be dangerous so be careful. Reduce the dosage slowly. See the doctor but also remember, they are only guessing...they just have more guesses to choose from. You can also change doctors.

    I also think F is the new horse they're all riding! Can't find the problem, it must be F. Remember when hormones caused everything?

    One more point, in my rant, I would like to make is, the drug companies give doctors amenties to try these drugs...easy testing, just saying.

    ...and my intestines have not recovered yet! Too much info, I know.

    Hope you get this resolved soon. You are not alone.

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  5. I would get that asshole doc to see me tomorrow. If he won't and your still yellowish, take your sweet ass to the ER and get a blood workup and some fluids. Asshole doctors. Fuckers still haven't figured out a way to treat my migraines without triptans.

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  6. I live with the white wolf...Lupus and pain is my constant companion. Do not give into a complacent doctor...if after Friday you are still in this pickle...find a NEW doctor who will really listen to you. Your pharmacist is correct...do not settle for any medication your body is rejecting so violently. I am sending you warm hugs and I am here if you need me. Peace, Mary Helen Fernandez Stewart

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  7. So sorry to hear of these troubles! All I can offer is a big hug and the hope that your doctor will adjust things to the correct amount. Hang in there!

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  8. I am so sorry, Linda, that you are having these problems with pain and all. Pain can cause so many other problems. I see my mom in pain most of the time with her stenosis and I see how her moods change with the degree of pain. She refuses to take any pain meds because of the problems they caused her in the past.
    I have no answers for you. Finding a doctor that you trust and feel comfort with is the most important thing. I do hope you will get the help you need on Friday. You are in my thoughts and I'm sending healing ((hugs)).
    ♥ audrey

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  9. Linda, God, I hate to hear you are having such awful troubles. The whole doctor thing is an issue I have had. If you can't trust the doc, you gotta change. But that can be expensive and tricky..you never know if you are going from the frying pan into the fire. I do not have fibromyalgia, but I do suffer from chronic pain (spinal stenosis, arthritic knee and foot, among other things). All I can offer is love and hugs and emotional support. Wish I had answers for your particular situation. Do you have friends you can ask for referrals to other doctors? Don't settle for a half-ass doc. Wish I could help more. Love you, my BB!!

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  10. Now you see why I hate doctors and why I refuse to take meds for anything. I've been in pain every day since October 31st 1978 when my back was broken in an industrial accident. At first I did everything the doctors said to do. I was on pain killers and muscle relaxents and had physical therapy five days a week and nothing helped. The doctor just kept giving me higher doses and more meds until I had a heart attach. Even after surgery and five more years of therapy I was still living with pain and this is when I decided that enough was enough! I'm nolonger waiting for when I'm going to be pain free because it's not going to happen. The pain is a part of me that isn't going to change for the better or go away. I just have to make the best of a bad situation. So, I only sleep an average of 4 hours a night and as I get older I've gotten a whole lot slower, but isn't that the case with most of us? I'm not saying you should do what I've done and shun doctors and all meds but I do think you need to listen to your body and when it's sending you messages like this and your doctor isn't concerned you need to find another doctor. I hate it you're feeling like this. Hang in there and if you need to rant you know I'm here for you. Hugs

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  11. I sure hope they get you off that blasted drug as quickly as is healthy. Medicines are not supposed to make us worse. I can't believe he is putting you off for two days.
    I feel so badly for you and just hope you can get through this quickly. If he doesn't pay attention, find another.
    Sending hugs and positive thoughts.

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  12. No matter how much you are hurting, it doesn't hurt the doctor at all. sorry, can't see you til next week. There are some good doctors out there but you really have to work to find one. Have you investigated any alternative treatments? I'm sorry you are suffering.

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  13. This is most displeasing. Have you explored homeopathy? I shun doctors 90% of the time because the cure always seems to be worse than the disease. I'm sorry you're not feeling well, make sure Sweet Man spoils the bejesus out of you (I'm sure he will though)

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  14. ~doctors suck...no if ans buts about it...its a big game to play around and see what will work and what won't...a little torture here and a little torture there...it can't be that bad right...uuuggghhh...i would call and demand to be seen...you my dear friend...should never have to go through such...not just the pain but the scary feelings you are harboring i am sure...my mother is going through the exact same issue with her meds...for her depression...it is beyond frustrating in any case...hell i'd take the yelling over the pain...there is something out there that will work for you...oh my dear friend...a healing warm breeze to ease your pain and frustration...my thoughts and prayers be with you this day and those to follow...i am so sorry to hear of all this trouble...much love light and blessings~

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  15. I don't have fibro. but yuou know I suffer from depression and I totally empathize with you about med. side effects..I owuld call my Dr. immediately and tell him/her that it's just too ubearable. I think your pharmicist is right that you shouldn't have to suffer, as you don't need another med. to make you so sick. Just don't stop suddenly taking it, even though I've tried that a few times with disastrous results. I'm sorry you're experiencing so much difficulty with finding the right med. Life just sucks sometimes and taking care of yourself by listening to your own intution needs to take priority over what a physician tells you. Take GOOD care of yoruself, Linda!

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  16. The docter wanted to give me anti depression pills, but i refused cause i hate pills and i'm over-sensitive with unnatural stuff. Painkillers make me dizzy or i have to throw up :-(
    Hope you feel better very soon my dear Linda! I guess i have to send you something to cure you ;-)

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  17. Linda, I am so sorry for you and so is my mom! I have been brought up, that if you don't have to take drugs, don't! Headaches, take raw almonds! Soar throat or aches inside your body, pure unpasterized honey. Need your blood to flow better in your body, garlic and onions. I have to write to you soon! I will do it through Etsy. I have been dealing with some other family things right now. Please my friend, if you don't have to take these drugs don't! I am sorry, I don't know really anything about fibromyalgia, I can't help you with that ;o( I am sending out lots of love to you and so is my mom!! Big Hugs ;o)

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  18. I am readidng this on Friday so I hope that by now you have some answers from your doctor. I hope you are feeling better.

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  19. Ooo, Cymbalta is a mean little drug for a lot of people. They wanted my son on it and we flatly refused. It's supposedly helps depression and pain but in a lot of people it makes it worse or causes some horrible side effects, like you're experiencing. I'm so sorry that you've been going through this. I hope they'll taper you off this drug and get you feeling better.

    Bright blessings,
    Bird

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